A person experiencing memory loss is, at the least, confused. When we can’t remember and track what’s going on, it’s very confusing. And it can be scary!
Anger and fear are natural responses. People with dementia often don’t recognize they have a problem. They just know that the world is not as they expect it to be.
Personality changes are common, as are changes in behaviors as the disease progresses. For instance, people with middle stage dementia frequently lose their social inhibitions. They forget the social customs we call manners. This can lead to actions that are embarrassing and very confusing for families.
Although working together as a team is optimal in elder care, that can be challenging in the case of dementia.
In the earlier stages, it is important that the person with dementia be involved in decision making. As the disease progresses, however, he or she will lose the ability to make reasoned decisions. More than with other conditions, the role of the family will change.
Determining when and how to phase out responsibility for decision making can be difficult. An Aging Life Care Manager can give you a sense of the stage of dementia. He or she can help walk you through the formal diagnosis process. An Aging Life Care Manager can also help you find resources now and to plan for the future.
Even if the memory loss condition is not curable, there are things you can do to make daily life more pleasant for all of you.
It’s very important that you reach out and get help. People with dementia need support and access to others who know what it’s like. Joining a support group of people with early stage dementia is invaluable!
Caring for someone with dementia can be physically and emotionally taxing. Family members need patience, strength, and regular breaks from caregiving. Support groups can be extremely helpful. There are also other programs and sources of support.
You don’t have to do this alone At Inspire Care, we understand dementia. Give us a call at 315-447-3164. We’d be happy to help with resources for everyone in the family.
Who can you talk to about this big change in your life?
I have known Becky Auyer and Inspire Care for over 10 years. I have recommended her to many friends and families.About 7 years ago, I hired her to help me with my parents. (I recall thinking I was a super hero, and I could do this well all by myself!)Early on, she helped me to navigate both of my parents getting off the road. That was a tremendous hurdle for our family and much needed for everyones safety.She helped us in the house with safety measures, meds, doctor appointments and check ins when I was away on travel.In 2017, my parents moved to senior apartment living. She helped us with that process, as well as helping us with mobility issues that both parents now had.Over the last 5 years, with COVID, my mother suffering numerous falls, rehab, and several hospitalization, Becky and her staff were always a phone call away. Becky, Gwen, Sharon, Deborah and Cheryl, all pitched in with daily treatments, showers, physical therapy, and sometimes taking turns at the hospital. This gave me so much comfort knowing they could help me in so many ways.During the 1st 6 months of 2022, both of my parents died at home with hospice, family, and the Inspire Care team helping us every step of the way.In a lot of ways, these last 12 years was the toughest job I ever had. I don't regret it, but I know I couldn't have done as well as I did without Inspire Care by my side until the end.
Inspire Care of CNY cared for both of my aging parents in the final stages of their lives. Becky and her team were FANTASTIC. We faced many challenges--moving my parents out of their house and into a retirement community, and then confronting various issues as their health failed. I don't know how we would have survived that phase of life without their patient, kind, and knowledgeable support. The support was for my parents, but also for us, their adult children. I wish I could give more than five stars!