For most family caregivers, frustration and guilt are common, as is anxiety and resentment. These feelings are normal and reasonable under the circumstances. It’s not realistic to eliminate negative emotions. Caring for an ailing family member IS emotionally taxing, especially in the case of memory loss. But sometimes the negativity can feed on itself.
Even pre-COVID, many 90-year-olds adamantly refused to go to a senior center, saying they didn’t want to be around “all those old people.” (!) Does this sound like your loved one? Admittedly, the senior centers of the past tended to focus on bingo and crafts. These activities are of limited interest to the newest generation of older adults. Happily, senior centers have been updating. Bingo and crafts are still there. But the upswing in technology use during COVID catapulted many centers into the 21st century
With summer’s warm weather, be on the lookout for dehydration in your loved one. The signs include confusion, fatigue, weakness, and sleepiness. Some people become dizzy and their balance is thrown off. Dry mouth, headaches, and muscle cramps are other symptoms of dehydration.
If the person you care for has dementia—memory or thinking problems from a condition such as Alzheimer’s, a stroke, or Parkinson’s—unpaid bills or a messy checkbook may have been your first sign that something was amiss. Certainly, in the later stages of dementia, your loved one won’t be able to manage their finances. But what about the in-between?
Elderly parents are living longer. Children are often dependent for more years than expected. Add to this the ongoing responsibilities to spouse/partner and jobs, and there is little wiggle room for the millions of family caregivers who find themselves squeezed in the middle as the “Sandwich Generation.”
Many older adults experience swollen legs and feet. For some, it’s because of sitting a lot and leading a sedentary lifestyle. For others, it’s the water retention side effect of a medication. And for others, the swelling—called “edema”—is a symptom of a chronic or even serious illness such as heart failure or liver or kidney disease.
The brain is another organ to keep fit, and regular workouts are a good thing! Our brains enable many types of thinking: Problem solving, planning, attention, and memory. They manage our emotions and help us understand the emotions of others. Our brains also control movement (balance, speed, and coordination). And it’s where we process our spatial awareness—used for packing a suitcase or reading a map.
Much of the strain of caring for a loved one lies in the loss of a predictable routine, a sense of “normalcy.” Understanding the course of your loved one’s condition—the rhythm of how it unfolds—can empower you to respond more flexibly to its challenges.
Your loved one may be watching for phishing scams on email, but now there are scams carried out by short message service (aka, texting). “Smishing” scams rose 58% in 2021. Nationwide they cost victims over $10 billion. Seniors are a prime target, as three out of five now own smartphones. While convenient, smartphones present new opportunities for getting scammed. Time to alert your relative to smishing.
Children generally like to feel included. But they may not know how to relate to an ill family member with limited abilities. Here are some ideas for home-based activities with elementary-age children.
Has your loved one been diagnosed with cancer? The vast majority (67%) of people with cancer live for another five years or more. A cancer is considered “stable” or “controlled” when tumors shrink or at least temporarily stop growing. This is not the same as being cured—no tumors—but it does make cancer more of a manageable chronic disease, like diabetes or asthma.
Do you ever look at friends and find yourself mad or upset because they have free time? They don’t have a relative that needs help? You might even wish they had it harder, had some real challenge in their life. And then you feel guilty. If this sounds familiar, you are not alone. Envy is a natural human emotion.
A primary care provider (PCP) is charged with monitoring and treating a person’s whole body. Specialists abound and indeed are important. But we are more than the sum of our organs. Your relative’s PCP helps ensure that specialists are not doing things that counteract each other. If you are looking for a new PCP, there are several types of providers to consider.
Is low vision making it harder for your loved one to cook? If food preparation has been one of their pleasures, they are probably grieving not only the change in their eyesight, but also the loss of creating and serving delicious meals. Even if cooking has not been a passion, the ability to safely prepare food for oneself is critical for maintaining independence and self-esteem. Fortunately, there are ways to empower your relative with simple strategies and inexpensive tools. Here are some techniques that augment and use all the senses. They also protect safety.
We’re breathing all the time. But when it comes to stress relief, not all breathing is equal. Our bodies are built to handle periodic crises. When we sense danger, our bodies release “stress hormones” that enable us to respond powerfully and fast. When the crisis is over, those hormones are no longer released. The body returns to relaxed, “normal” mode. But chronic stress is damaging. When we’re stressed every day, the “fight-or-flight” hormones keep running. Not a lot, but enough to upset the body’s balance and undermine physical health and mood. The body is distracted from its routine tasks of repair and maintenance. This can result in significant consequences.
If the person you care for has dementia, you may have noticed their withdrawal from conversations, movies, even from reading books or the newspaper. Anything with an involved plot line is now too difficult for them to follow. Poetry, on the other hand, involves rhythm and images, which can stimulate memories of experiences, emotions, smells, tastes, and other sensations. All quite accessible by persons with dementia. Plus, many older adults went to school when poetry was an active part of the curriculum. Exploring fun poetry together may tap into positive memories from the past.
Those who donate organs, eyes, or tissue leave a tremendous legacy, often the gift of life itself: Allowing someone a steady heartbeat. Or the vision to see a grandchild. Or healthy skin to cover a burn or cancer site. National Healthcare Decisions Day (April 16) is when everyone is encouraged to create or update their advance directive. These end-of-life documents include a section for letting family members and healthcare providers know whether you choose to be an organ donor.